Data Management & Sharing: Share Data

A list of NIH-supported domain-specific data repositories that make data accessible for reuse and are open for both submitting and accessing data

A list of NIH-supported repositories that restrict data submission to a specific set of researchers, as well as those that limit who may access the data.

A NIH-curated list of generalist repositories that accept data regardless of data type, format, content, or disciplinary focus.

DigiNole is FSU's institutional repository. DigiNole can store and share small datasets created by FSU affiliates.

This chart summarizes the characteristics, capabilities, and standards of different generalist repositories. It is important to state that researchers should first determine if an appropriate domain repository exists for their research data. If using a domain repository is not possible, then a researcher should review both the general repository chart and consider their own institutional repository as a possible location to store their data.

De-identified data may need to be shared to adhere to the new NIH DMS Policy. Johns Hopkins’ provides this list of suggested tools, including the NLM Scrubber for Clinical Text De-Identification.

The LDbase data repository team developed an infographic and documentation guide to walk through the steps of the de-identification process.

This resource provides a set of principles and best practices for creating a robust framework for protecting the privacy of research participants when sharing data under the NIH Policy for Data Management and Sharing (DMS).

The FSU Office of Human Subjects Protection has templates for protocols and consent forms that address NIH data sharing guidelines. These forms are accessible in RAMP IRB under the Library and Templates tabs.

The FSU Office for Human Subjects Protection provides templates for research protocols, consent forms, debriefing forms, and checklists for researchers to download.

This NIH-created resource provides points to consider and sample language for informed consent documents of research studies which plan to store and share data and/ or biospecimens for future use.

Through the Biostatistics, Informatics, and Research Design (BIRD) Consulting Suite, FSU faculty, staff, and students can have a data safety, HIPAA, and data collection consultation with a BIRD expert.

The RDDC assists FSU researchers with data quality checks, data collection, and data cleaning. Requests for assistance must be submitted via the BIRD Consulting Suite ticketing system.